Protecting Genetic Privacy in Biobanking Through Data Protection Law, Hardcover

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Item specifics

Condition
Very Good: A book that does not look new and has been read but is in excellent condition. No obvious ...
Book Title
Protecting Genetic Privacy in Biobanking Through Data Protection
ISBN
9780192896476
Subject Area
Law
Publication Name
Protecting Genetic Privacy in Biobanking Through Data Protection Law
Publisher
Oxford University Press, Incorporated
Item Length
10 in
Subject
General
Publication Year
2021
Type
Textbook
Format
Hardcover
Language
English
Item Height
0.9 in
Author
Dara Hallinan
Item Weight
24.5 Oz
Item Width
3.1 in
Number of Pages
304 Pages
Category

About this product

Product Identifiers

Publisher
Oxford University Press, Incorporated
ISBN-10
0192896474
ISBN-13
9780192896476
eBay Product ID (ePID)
13050026102

Product Key Features

Number of Pages
304 Pages
Language
English
Publication Name
Protecting Genetic Privacy in Biobanking Through Data Protection Law
Subject
General
Publication Year
2021
Type
Textbook
Author
Dara Hallinan
Subject Area
Law
Format
Hardcover

Dimensions

Item Height
0.9 in
Item Weight
24.5 Oz
Item Length
10 in
Item Width
3.1 in

Additional Product Features

Intended Audience
Scholarly & Professional
LCCN
2020-948072
Dewey Edition
23
Dewey Decimal
342.240858
Table Of Content
1. Introduction2. Genetic Data, Genome Understanding, and Socially Relevant Information3. The Context and State of the Art in European Biobanking4. Genetic Privacy and Other Interests in Biobanking: Conflict and confluence5. The Protection of Genetic Privacy in Biobanking at International Level: Establishing a base-line standard for genetic privacy protection in biobanking6. Do we Need Data Protection at All? Evaluating protection for genetic privacy in biobanking in Europe excluding data protection7. Testing the GDPR in Relation to Biobanking: When does the GDPR apply to biobanking?8. Testing the GDPR in Relation to Biobanking: How does the GDPR classify the biobanking process?9. Testing the GDPR in Relation to Biobanking: How do the GDPR's substantive provisions apply to biobanking?10. A Critical Analysis of the Efficacy of the GDPR as a Framework for the Protection of Genetic Privacy in Biobanking11. Conclusion
Synopsis
Biobanks are critical infrastructure for medical research but they are also the subject of considerable ethical and legal uncertainty. Given that biobanks process large quantities of genomic data, questions have emerged as to how genetic privacy should be protected. What types of genetic privacy rights and rights holders should be protected and to what extent? Since 25th May 2018, the General Data Protection Regulation (GDPR) has applied and now occupies a key position in the European legal framework for the regulation of biobanking. This book takes an in-depth look at the function, problems, and opportunities presented by European data protection law under the GDPR as a framework for the protection of genetic privacy in biobanking in Europe. Hallinan argues that the substantive framework presented by the GDPR already offers an admirable base-line level of protection for the range of genetic privacy rights engaged by biobanking. The book further argues that, whilst numerous problems with this standard of protection are indeed identifiable, the GDPR offers the flexibility to accommodate solutions to these problems, as well as the procedural mechanisms to realise these solutions., Biobanks are critical infrastructure for medical research but they are also the subject of considerable ethical and legal uncertainty. Given that biobanks process large quantities of genomic data, questions have emerged as to how genetic privacy should be protected. What types of genetic privacy rights and rights holders should be protected and to what extent? Since 25th May 2018 the General Data Protection Regulation (GDPR) has applied and now occupies a key position in the European legal framework for the regulation of biobanking. This book takes an in-depth look at the function, problems, and opportunities presented by European data protection law under the GDPR as a framework for the protection of genetic privacy in biobanking in Europe. Hallinan argues that the substantive framework presented by the GDPR already offers an admirable base-line level of protection for the range of genetic privacy rights engaged by biobanking. The book further argues that, whilst numerous problems with this standard of protection are indeed identifiable, the GDPR offers the flexibility to accommodate solutions to these problems, as well as the procedural mechanisms to realise these solutions., Hallinan argues that the substantive framework presented by the GDPR offers an admirable base-line level of protection for the range of genetic privacy rights engaged by biobanking.
LC Classification Number
K3601

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