Intended AudienceScholarly & Professional
Reviews"A worthy guide to all those who seek better care for the worst stages of dementia." --Joanne Lynne, MD, MA, MS, Director, Center to Improve the Care of the Dying "[This book] is distinguished by its humane approach to demented patients as person worthy of medically expert care as it is mindful of the need for person-centered palliative care in the later stages of this tragic and mortal disease. This is an essential, unique, well-written, and long overdue contribution." --Steven Miles, MD, Soros Faculty Scholar, Project Death in America, Geriatric Medicine, St. Paul Ramsey Medical Center, Center for Bioethics, University of Minnesota
Table Of ContentContributors Introduction Part I: Clinical Issues Alzheimer's Disease and Other Progressive Dementias, Autumn Klein and Neil Kowall Infections in Advanced Dementia, Ladislav Volicer, Gary H. Brandeis, and Ann C. Hurley Overcoming Eating Difficulties in the Severely Demented, Giovanni B. Frissoni, Simone Franzoni, Giuseppe Bellelli, Judith Morris, and Victoria Warden Behavioral Symptoms of Dementia, Ladislav Volicer, Ann C. Hurley, and Ellen Mahoney Quality of Life in Late-Stage Dementia, Sandy C. Burgener Part II: Ethical Issues The Moral Basis for Limiting Treatment: Hospice Care and Advanced Progressive Dementia, Stephen G. Post and Peter J. Whitehouse Palliative Care for Alzheimer Patients: Implications for Institutions, Caregivers, and Families, Mildred Z. Solomon and Bruce Jennings Nursing Staff As Moral Agents, Ann C. Hurley, Sally A. MacDonald, Sara T. Fry, and Veronika F. Rempusheski Advanced Proxy Planning, Margaret Ann Mahoney, Ann C. Hurley, and Ladislav Volicer Complexities of the Grieving Process in Spouses of Patients with Alzheimer's Disease, Yvette L. Rheaume and June Brown Part III: Implimentation Acceptance of Hospice Care for Dementia Patients by Health Care Professionals and Family Members, Daniel J. Luchins, Patricia Hanrahan, and Kim Litzenberg Barriers to Providing Hospice Care for People with Dementia, Joyce Simard and Ladislav Volicer Providing Palliative Care for the Terminal Alzheimer's Patient, Sally J. Smith The Experience of Jacob Perlow Hospice: Hospice Care of Patients with Alzheimer's Disease, Paul R. Brenner Effects of Hospice Interventions on Nursing Home Residents with Later Stages of Dementia, Christine R. Kovach Index
SynopsisThis volume demonstrates how hospice care leads to improved quality of life for patients with terminal dementia and their families. Much of the information is based on the successful 10-year experience of the E.N. Rogers Memorial Hospital, where the first palliative care program for the management of patients with advanced dementia was developed. The book discusses Alzheimer's and other progressive dementias and reviews the clinical problems encountered, including infections, eating difficulties, and behavioral problems. It further addresses how to implement hospice care programs for these patients and the ethical aspects involved. This volume will be of compelling importance to nurses, physicians, and social workers involved in hospice or home care of patients at the last stages of dementia., This volume demonstrates how hospice care leads to improved quality of life for patients with terminal dementia and their families. Much of the information is based on the successful 10-year experience of the E.N. Rogers Memorial Hospital, where the first palliative care program for the management of patients with advanced dementia was developed. ......